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eRaff New - Side Effects After Coming OFF of Lamictal Created by eRaffat4/28/08 - 10:59 am|54 Views|1 Comment Posted To: Medication Issues How long should I expect to have side effects after coming off of Lamictal? I am three months removed from the last 25mg pill, and I am still experiencing some of the medication's side effects. Has it made changes in my brain? Will the side effects eventually...
amyoon New - My Hair is Falling Out Created by amyoonat8/4/08 - 12:57 pm|68 Views|7 Comments Posted To: Medication Issues Hi, I am taking 1500 mg a day of Keppra and 200 mg of Lamictal.  Is anyone losing their hair?  It's horrible.  It's so vain but still it's hard to see my thick black hair fall out in the sink and I have maybe a fifth of what I used to have.  Are...
ladybu... New - Seizures, school and peers Created by ladybu...at11/20/08 - 5:05 pm|13 Views|2 Comments Posted To: Living With Epilepsy - Youth Issues Hello all,
daydre... New - Lamictal Rash Created by daydre...at7/14/08 - 6:05 pm|73 Views|9 Comments Posted To: Medication Issues
Hlayton1 New - Trying to deal Created by Hlayton1at11/6/08 - 3:41 pm|18 Views|1 Comment Posted To: New to Epilepsy.com Hey everybody I'm new to this site so I hope I'm doing this right, I am a sophmore in college and have been studying endlessly to get a degree in Aviation Tech. on my way to being a commercial pilot. About 3 weeks ago I had a tonsillectomy.
quirky New - 6 months free of seizures :-) Created by quirkyat11/20/08 - 5:41 am|21 Views|2 Comments Posted To: Surgery Issues Hi all,   It's actually been a while since I have been on the site. It's been a busy year for me. I had brain surgery last May 22nd to remove a lesion in my left pariatel lobe that was causing my seizures. That all went well until a few...
rrd123 New - epilepsy,life,plans Created by rrd123at11/20/08 - 3:59 pm|18 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues Hey im ryan im almost 18 and have been having seizures since i was 15 roughly about every 6 months.I perosnaly consider myself to be outgoing and friendly.I had major plans to go into the british army at the age of 18 then persuing a career in the police service....
picnup... New - MEDICAL ALERT I.D.'s Created by picnup...at11/17/04 - 11:25 am|11150 Views|78 Comments Posted To: Families & Friends HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a seizure after you are unable...
Daniella New - who am i? Created by Daniellaat2/1/08 - 4:38 am|148 Views|14 Comments Posted To: Living With Epilepsy - Youth Issues i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...
WendyR... New - Aggressive Side Effects of Meds Created by WendyR...at10/12/08 - 3:33 pm|33 Views|3 Comments Posted To: Medication Issues My daughter is 13 and on multiple meds for seizure control.  She had a stroke in utero which affected the right side of her brain.  Her doctor at home sent her to Ohio for a second opinion in Feb and again in Aug.  She is a candidate for brain surgery...
DoveHo... New - Scared to go somewhere due to seizure Created by DoveHo...at11/20/08 - 8:19 am|21 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues
ladybu... New - Seizures, school and peers Created by ladybu...at11/20/08 - 5:05 pm Posted To: Living With Epilepsy - Youth Issues Hello all,
leeann... New - top 100 pediatric neurologists? Created by leeann...at7/12/07 - 1:54 am|369 Views|3 Comments Posted To: Products, Resources, Helpful Links does anyone know where i can find the top 100 list? i have googled it and can't find anything. my son is in desperate need of a doctor who knows what the heck they are talking about. i don't care where i have to go....
snoviasif New - Completely Confused and Totally Frustrated Created by snoviasifat11/20/08 - 9:14 am|19 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues
amyoon New - Anybody know about zonegran? Created by amyoonat8/23/08 - 1:12 pm|37 Views|5 Comments Posted To: Medication Issues I'm just starting zonegran trying to taper off Keppra.  Does anyone have any experience or advice about this med?  I'm pretty scared to try something new AGAIN!
Bloody... New - Anyone on Lamictal AND Keppra? Created by Bloody...at11/20/08 - 7:50 am|24 Views|3 Comments Posted To: Medication Issues Just come back from seeing my doctor (not 100% happy with how the appointment went, and was basically told despite my last EEG being 13 years ago, which they have lost the results to, it's gonna be hard to get me another one because of restrictions put on...
elizleigh New - Lamictal side effects/weight changes? Or Tegretol? Created by elizleighat8/13/07 - 10:19 am|3428 Views|32 Comments Posted To: Medication Issues Hi everyone, For anyone who is or has been on lamictal, what has been your experience as far as weight changes or any other side effects with lamictal? I tend to gain weight very very easily and am looking for another med to try....
trisper New - Memory Problems with Surgery? Created by trisperat11/7/08 - 6:49 am|27 Views|4 Comments Posted To: Surgery Issues I am scheduled for a left temporal lobectomy on 12/18 and I just had a couple of questions...my dad is afraid that I am going to get amnesia and forget him...I have tried to put his mind at ease saying that it isn't possible, but I don't think I am being very...
rock956 New - Starting Lamictal Created by rock956at10/27/08 - 7:13 am|35 Views|2 Comments Posted To: Medication Issues Hello everyone, I am weaning off Depakote and starting Lamictal for my JME. I have been seizure free for 4 years, and i know its a risk but ive heard good things about Lamictal and want to get off the Depakote for obvious reasons. My main concern...
chew New - Dateless2 Created by chewat6/6/07 - 1:25 am|501 Views|8 Comments Posted To: Men With Epilepsy Im a 38 single black male from SC .I suffer from E.When I tell women I have E and I dont drive they either think the worst or run away before getting to me.My friends tell that I tell them too soon.I just like letting them know what...
DoveHo... New - Motherhood and epilepsy Created by DoveHo...at11/20/08 - 8:34 am|5 Views Posted To: Women With Epilepsy I am only 19, so it's probably way too old to think about this, but I'd be scared to pass epilepsy on to kids. I'd also be nervous about having a seizure while shopping or doing other everyday things with a small child or baby and the baby being on its own...
docta_j New - alcohol and simple-partial seizures Created by docta_jat1/10/06 - 5:01 pm|2763 Views|15 Comments Posted To: Teen Group i was diagnosed two years ago with simple-partial seizures and have been on 150mg lamictal twice a day since then. the thing is, i never had anything past a simple-partial and they happened pretty infrequently, maybe 5 per year. ...
Rodzenjr New - Hello I am new here Created by Rodzenjrat11/18/08 - 11:33 am|10 Views|2 Comments Posted To: New to Epilepsy.com Hello everyone, I am 21 yrs old and have had epilepsy since I was 18 months. I just thought I would join a community that could relate to me.  Jessica
stilla... New - goose bumps & 'hidden' seizures? Created by stilla...at1/9/06 - 9:07 pm|2199 Views|21 Comments Posted To: New to Epilepsy.com Hi, this is Maddie, I'm really glad to find this site. I still don't know for sure whether i have some kind of epilepsy. Neurology hasn't been much help, but my own dr believes i do because of a long history of strange episodes...
Shunko New - Neurosurgery and social problems. Created by Shunkoat11/20/08 - 1:20 am|12 Views|1 Comment Posted To: Families & Friends I was wondering: does a surgery have positive effects on social problems and bad relations? Did people who have been through a surgery, and had social problems before their surgery, noticed they improoved their relationships with people? I'm asking...
wendy ... New - Confused, down in the dumps, and need to vent! And I guess feelin... Created by wendy ...at12/6/06 - 8:42 pm|571 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues Hi everyone. I was diagnosed this august with epilepsy. I had thought I had only 3 seizures in a years time period when I finally went in to the dr. My eeg came back abnormal and I was diagnosed with fronto-temporal lobe/ partial...
Shunko New - Very lonely. Created by Shunkoat11/15/08 - 12:40 am|45 Views|4 Comments Posted To: Families & Friends
meresu... New - lamictal side effects Created by meresu...at10/21/08 - 9:13 pm|44 Views|3 Comments Posted To: Medication Issues i have been on lamictal since i was diagnosed with epilepsy almost 10 years ago, and since then i have always had mental "shut-downs." my husband calls me a robot because every now and then, it's like i black out for half a second then "reboot." last week...
Metria New - Wellbutrin Created by Metriaat9/17/08 - 10:37 am|18 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues Back in 2003 I was on Wellbutrin for several months until it caused a seizure. My doctor obviously changed my medication and I thought that was the end of my problems. Now it's 5 years later and a few weeks ago I had another seizure. I was given several...
ckolonick New - OMega 3's Created by ckolonickat3/30/08 - 1:56 pm|103 Views|7 Comments Posted To: Complementary Therapies Hello,
MichaelK New - Breakthrough seizure caused by lack of sleep Created by MichaelKat10/11/08 - 11:58 pm|97 Views|18 Comments Posted To: Living With Epilepsy - Adult Issues Due to some of the pressure I am under I do not get enough sleep. Last night was one of those examples where I chose to work extra and it caused me to have a breakthrough seizure after 6 weeks of having no seizures whatsoever. Is it really important to tell...
MaureenOT New - Trileptal causing drop seizures in 2 year old with generalized se... Created by MaureenOTat1/24/08 - 7:18 pm|49 Views|2 Comments Posted To: Medication Issues My 2 1/2 year old son with a history of 2 febrile grand mal seizures and 2 atypical atonic seizures was prescribed Trileptal. After a couple weeks on the medication he began exhibiting strange startle responses and drop seizures (with no loss of consciousness) where...
shellep New - keppra and psychotic behavior Created by shellepat9/9/08 - 9:36 am|70 Views|8 Comments Posted To: Medication Issues my daughter is 11 and just started having grand mal seizures in may 08. in june she was put on keppra 500mg twice a day. a couple weeks ago she started having  what looked like focal seizures. but the drs say its not a seizure. they think its behavioral or...
pennyh... New - what vitamins to take? Created by pennyh...at7/5/05 - 7:21 am|862 Views|13 Comments Posted To: Complementary Therapies Hi everyone, I have another question for all of you.  I have read in your conversations many times, that it is important to take certain vitamins to help control seizures.  I would like to know which vitamins and...
debora... New - keppra vs. topamax Created by debora...at12/23/07 - 12:06 pm|308 Views|21 Comments Posted To: Women With Epilepsy i'm a 28 year old woman diagnosed with juvenile myoclonic epilepsy when i was 16 - and have been on depakote since. my doctor has, of course, always told me that i should let him know when i'm thinking about getting pregnant. well, it's now within a couple...
rosegirl New - sex drive Created by rosegirlat10/9/06 - 11:15 pm|4866 Views|48 Comments Posted To: Women With Epilepsy Anyone notice that it practically disappears? I certainly have. I know that it's probably because of the meds but it would be nice to have it back. ...
stephs... New - Med level fluctuations? Created by stephs...at11/17/08 - 6:20 am|19 Views|3 Comments Posted To: Medication Issues
SassyM... New - Depression and Brain Surgery...What we should talk about and know Created by SassyM...at7/25/08 - 6:06 pm|236 Views|14 Comments Posted To: Surgery Issues I have been thinking a lot lately about how so many people here have experinced depression after brain surgery.  It seems to be a subject that is big but not largely talked about. I myself am experincing a good amount of depression.  I had brain surgery...
pdl1 New - Possible cure for absence seizures Created by pdl1at6/16/05 - 5:53 pm|15422 Views|92 Comments Posted To: Medication Issues I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...
3Hours... New - Keppra: A Magic Bullet Created by 3Hours...at11/13/08 - 1:42 am|50 Views|7 Comments Posted To: Medication Issues Keppra is fast acting with a short half-life.  I weaned myself off continual use of Keppra over side-effects.  Dilantin will soon not be available for me, so now I am going to try to take a max 12 hour dose of Keppra only on the warning auras of a gran...
zoe49576 New - Depression and Right Temporal Lobectomy Created by zoe49576at11/18/08 - 7:20 pm|3 Views Posted To: Surgery Issues I recently Had a Right Temporal Lobectomy 10-22-08 and the Depression is just starting to hit me.  I have bipolar disorder and have been on Zoloft since before the Sugery.  When I started to feel depressed I have been having thoughts of breaking up with...
steveh New - FCC Regulations on flashing graphics on television Created by stevehat9/7/07 - 10:08 am|707 Views|30 Comments Posted To: Advocate for Epilepsy I've discussed the matter with commissioner Adelstein and he thinks it would be a fine idea. Anyone have any opinions on this matter? I don't think these sorts of things only effect those of us with epilepsy. Those with Chronic...
jeffre... New - WHEN DOES A MEDICAL EXAMINER CLAIM SUDEP AS CAUSE OF DEATH? Created by jeffre...at11/18/08 - 6:56 pm|6 Views Posted To: Families & Friends
christ... New - chest wall infection and Seizures Created by christ...at11/18/08 - 3:34 pm|8 Views Posted To: Living With Epilepsy - Adult Issues Hello Everyone:   I have been diagnosed with Epielpsy almost two years ago to the day! now my grand mal or tonic clonic seizures are getting worse ever since i got this silly chest infection, now i live in a small town and the doctors say...
happyh... New - simple partial seizures Created by happyh...at11/17/08 - 12:58 pm|15 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues Hi, I have had simple partial seizures for around 10 years starting when I was about 26years. I believe they are called 'psychic' simple partial seizures as I have an overwhelming feeling of de-ja-vu where I 'know' I am feeling and thinking exactly...
bren1010 New - no energy, always ache, sleep sleep & raising young child Created by bren1010at11/16/08 - 9:39 pm|50 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues I am wondering if any mothers that have seizures and take medication feel as guilty as me.  I don't feel like getting out of bed in the morning which means I have taught my 4 yr old to sleep in also.
Lauren... New - soar throat and congestion with keppra?? Created by Lauren...at11/15/08 - 11:17 pm|15 Views|2 Comments Posted To: Medication Issues Hey everyone my neurologist has recently started titrating me on to Keppra and as of right now (November 16th, 2008) I am on 2500 mg a day (1250 mg 2x a day) I will be raised again by next week and possibly again the next week, depending on how things go.
Brysie... New - Should I start my 3 year old on Valproic acid? Created by Brysie...at11/18/08 - 11:23 am|15 Views|3 Comments Posted To: Medication Issues Hello all!  I am looking for any advice on this med.  My son is currently on Topomax and Keppra(we are weaning).  He is still having absence and drop seizures, more common in the morning.  I hate topomax, what it does to him.  I just don't know what...
missdee New - where are you????? Created by missdeeat5/19/06 - 5:14 am|6061 Views|126 Comments Posted To: Corner Booth just curious where everyone is from. i,m from sc....
aspepath New - Lamictal and Keppra and pregnancy Created by aspepathat8/14/05 - 9:14 am|1389 Views|12 Comments Posted To: Women With Epilepsy Hi everyoneI have been on depakote for 14 years and changed over to Lamictal in February.  I have noticed that my siezure activity increases when I ovulate and when I have my period.  My doctor is concerned about...