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Resource Specialist

Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

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JMRA01
JMRA01
New - How can I tell a good neurologist from a bad one?
Created by JMRA01at12/18/08 - 9:28 am
Answered by epi_helpat12/25/08 - 8:19 pm
Long question.  Here's the executive summary: 1) treated by psychiatrists for years without significant improvement.  2) On a whim (practically) psychiatrist suggested evaluation for ADHD.  3) 2 days of cognitive testing.  Result: strong/severe/baffling...
rbavis
rbavis
Cyclical Seizures (simple partial - motor)
Created by rbavisat12/8/08 - 8:16 pm
Answered by epi_helpat12/11/08 - 1:21 pm
Hi, I am curious if there is anyone who experiences (or has experienced) a very regular cycle of monthly seizures.  I have for many years experienced 1 seizure every 20-25 days (and almost always in the evening). The relatively predictable nature...
sujay
sujay
childhood epilepsy
Created by sujayat12/9/08 - 3:38 am
Answered by epi_helpat12/11/08 - 1:05 pm
Dear sir, I am sujay paul from India, my daughter who is now 3 years old is a patient of childhood epilepsy.  It faced 1st attack on 2-09-07, 2nd on 12-12-07, 3rd on 28-01-2008 then i visited to a neurologist and according to his suggestion i started...
sco4kids
sco4kids
when is it time to change AED?
Created by sco4kidsat11/24/08 - 11:15 am
Answered by epi_helpat11/25/08 - 7:16 pm
kynda
kynda
Rollercoaster Life
Created by kyndaat10/25/08 - 3:37 pm
Answered by epi_helpat11/17/08 - 12:04 pm
My Husband Kelly is 49 yrs old. He been havingTonic-Clonic for 30 yrs, I have been married to him for almost 12yrs now. The last About 9 yrs, his seizure's have been uncontrolled! His last 2 E.E.G's have beenabnormal in a different way. They...
Mally Mom
Mally Mom
Absence seizures/Tuberous Sclerosis
Created by Mally Momat10/27/08 - 8:00 am
Answered by epi_helpat11/17/08 - 5:56 am
 
Sandee
Sandee
seizures?
Created by Sandeeat11/16/08 - 7:11 pm
Answered by epi_helpat11/17/08 - 5:45 am
I have been told that I am having simple partial seizures.  My tests came back normal. My symptoms aredeja vu, srtong chemical taste and smell, light headed that I ahve to sit or get a hold of something (never fallen), I gag through most episodes,...
bwellb...
bwellb...
My 10 year old daughter suffers from nocturnal epileptic syndrome...
Created by bwellb...at11/6/08 - 6:34 am
Answered by epi_helpat11/17/08 - 5:23 am
My daugher was 5 when she started having horrible night seizures, 10-20 a night. It took us 2 years to find a dr. that diagnosed her and found a medicine that has helped. She is currently taking 800 mg a day of tegretol xr., which seems like an extreme amount...
jeffre...
jeffre...
When does a medical examiner claim it's SUDEP?
Created by jeffre...at11/16/08 - 3:47 am
Answered by epi_helpat11/17/08 - 5:03 am
Hi,
butter...
butter...
MY SON IS AUTISTIC
Created by butter...at10/27/08 - 7:01 am
Answered by epi_helpat11/15/08 - 8:20 am
MY SON LAST YEAR 2007 HE WAS SUFFER FOR ENCEPHALITIS AND THAT REASON HE STARTED HAS SOME  SEIZURES IS PARTIAL HE STARTED ON THE LEFT SIDE AND HE CAN BREATH WELL AND HIS SALIVA COME DOWN FOR HIS MOUTH HE IS IN 3 MEDICATION TRILEPTAL, ZONEGRAM, DEPAKOTE HE...
ingcam
ingcam
issues adjusting
Created by ingcamat10/29/08 - 6:25 am
Answered by epi_helpat11/15/08 - 8:06 am
Hello, I am recovering from brain surgery (not for epilepsy) and had some post-op seizures.  I am told one seizure lasted quite a while and was difficullt to stop.  Now I have ataxia (cerebellar) that is probably related to damage from status. ...
mama40
mama40
Pain under left ear
Created by mama40at10/29/08 - 4:52 pm
Answered by epi_helpat11/15/08 - 7:54 am
Has anyone had quick sharp pains on the left side of the neck right under the ear? I get them a couple times a day, then within 2-3 days of that I have a seizure. I KNOW they are somehow related to my seizures, but Neurologist says they're not. The pain...
yogaguy
yogaguy
Seizures and Disability benefits
Created by yogaguyat11/5/08 - 12:19 am
Answered by epi_helpat11/15/08 - 7:51 am
Hi. I'm 37 years old, and was diagnosed with having seizure-like episodes about 4 years ago. The first three years since they started I averaged about one a year, but I have had 5 this year, with 3 occuring in one week. My job with the city could possibly...
ttammy
ttammy
seizure?
Created by ttammyat11/6/08 - 11:22 am
Answered by epi_helpat11/15/08 - 7:33 am
My balance is off due to seizure medication. but for 24 years or so I have fallen down forwards  this last year it is sideways,from this I always thought I was clumsy but read up on it.  My doctor has taken many tests and nothing,is it...
Agill
Agill
Lighting and Seizures
Created by Agillat11/6/08 - 6:43 pm
Answered by epi_helpat11/15/08 - 7:12 am
I'm a teacher who works in a school with no windows and find that the flourescent lighting can really bother me at times. I am really scared that this will cause me to have a seizure while teaching.  Since I don't have the option of turning off the lights...
amirreza
amirreza
amirreza
Created by amirrezaat11/7/08 - 9:01 am
Answered by epi_helpat11/15/08 - 7:07 am
dear sir.  I de like to know  is  carbamazepin serum level  the same as oxy -carbamazepin serum level ? i mean  does the oxy -carbamazepin converts  to carbamazepin in body ?  the same as pirimidon & phenobarbital .   thank...
amirreza
amirreza
amirreza
Created by amirrezaat11/7/08 - 9:27 am
Answered by epi_helpat11/15/08 - 6:58 am
dear sir . i want to know more about sabril side effects  for my 4 years old son  with refractive epilepsy.  it is going to be started for him .i read  some about the ophtalmic side effects of sabril . thank alot .
kimf
kimf
feelings of panic~but no seizures. What's going on?
Created by kimfat11/11/08 - 8:32 am
Answered by epi_helpat11/15/08 - 6:49 am
Yesterday while sitting in class I had a wash of panic come all of the sudden accompanied with a rapid heartbeat.  I got up and walked to the bathroom to calm myself.  I have had these spells several times before and never experienced a seizure but it...
Abster05
Abster05
I would like to help
Created by Abster05at11/14/08 - 10:34 pm
Answered by epi_helpat11/15/08 - 6:32 am
My name is Abby Nash and I am an attorney for the Health Bureau of the New York State Insurance Department.  While my focus is more on HMOs then Medicare, from time to time to we do get questions regarding these issues. In addition, as a professional courtesy,...
DavidLM
DavidLM
Seizures in the Fall
Created by DavidLMat10/27/08 - 11:09 am
Answered by epi_helpat11/15/08 - 6:28 am
Has there ever been any studies lately (or even at all for that matter) regarding people w/ epilepsy being more suseptible to seizures during October due to the additional amount of electricity in the air?
snoviasif
snoviasif
E, bipolar, & learning
Created by snoviasifat11/7/08 - 9:56 am
Answered by epi_helpat11/10/08 - 5:38 am
I was diagnosed with E in 2003. It was suspected from a head trauma that I had 4 years before. Though bipolar looks genetic in my family could mine have been triggered by the accident or by seizures? Also I am trying to learn a new language and am...
Norton
Norton
Multiple Seizure Disorder
Created by Nortonat11/9/08 - 5:17 pm
Answered by epi_helpat11/10/08 - 5:24 am
 Hello,
jutter...
jutter...
Uncontrolled seizures and jobs
Created by jutter...at10/30/08 - 12:36 pm
Answered by epi_helpat11/4/08 - 3:21 am
I am a vocational coordinator at a private school for special needs. I have a student who has uncontrolled seizures throughout the day. Most are head drops, but can be worse when stressed. He wants to work in the community next year and will have a job coach...
Aries
Aries
Transitioning Medicines
Created by Ariesat11/3/08 - 8:06 am
Answered by epi_helpat11/3/08 - 8:30 am
My daughter has been seizure free for 6 years.  She was recently diagnosed with Rheumatoid Arthritis and rheumatologist and neurologist agree that it was caused by her seizure drugs (carbatrol) she is now beginning the process of tranistioning from carbatrol...
Joyce ...
Joyce ...
Scared (wodowed)Mom
Created by Joyce ...at10/26/08 - 7:23 am
Answered by epi_helpat10/27/08 - 5:53 am
My daughter is 10 and has  (we think) 4 seizures with one grand mal a few days ago. She woke up around 6 in morning with a scream and started seizing. Was transported to hospital and stayed overnight. We go nest week to see neurologist. She has had a complete...

Questions
General Health and Women's Issues
Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.
20
Finding Help
How to find or access help in the community, talking to health care providers and navigating systems.
29
Insurance Issues
Concerns and questions about insurance and medication coverage
5
Lifestyle and Stress Management
Managing lifestyle and stress to help seizure control and general well-being.
2
Managing Social Issues
Impact on family, relationships, work, leisure and independent living.
11
Medication Management
Information about medications, practical tips, memory aides and problems taking meds.
38
Open Forum
Your concerns, ideas, or questions!
13
Parents and Epilepsy
Parenting children with seizures or management issues for parents who have epilepsy.
19
Products and Resources for Epilepsy
Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.
4
Safety Management
Safety concerns, seizure first aid, and ways to prevent or lessen risks.
3
Sorting Out Seizures
Questions about diagnostic testing or concerns.
48
Surgery, Devices and Other Treatments
Questions about surgery, devices, diet or other non-medical treatments.
12
Thinking, Learning, Mood, Behavior
Questions about effect of seizures and treatment on learning, mood and behavior.
9