I have had epilepsy for 29 years
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To find a story or topic of interest, enter a username or keyword in the box below.
Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.
People Stories Index
 Caroli... | ||||
 sanicay New - My story
I developed epilepsy due to Aortic valve replacement at the age of 27. I am now 38 and still kickin! However i will have epilepsy forever. It is alot better controlled now then it used to be.
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 binkey16 New - Lindas episode
Linda M.Shea formerly of Buffalo NY, now resides in Waynesville MO, with my husband Richard, and 11 year old daughter Megan Rose.
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Ginger... New - Newest phone call from the doctor
Receiving the call on the way to work that my medication isn't cutting it anymore. Now what do I do?
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peters... | ||||
lespic... New - Temporal Seizure Disorder
I am 44 years old so I not new to my challenges with epilepsy but I have a question about how I feel when I'm about to have a temporal seizure.
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rikk New - shake and shout from the inside out
started age 3-12. stopped 13-30. return 30-40 with multiple med control. 41 control gone. worst 300 in one month, best 12. multi-type. simple, complex, generalized. not surgical canidate. vns implant on 11-12-08. activation 11-21-08. left side weakness,...
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 dmacas... | ||||
codysmom New - cody
My 10 year old son has recently been diagnosed with Landau Kleffner Syndrome. We have only been diagnosed since October. We are steadily having to go for EEG's and MRI's. Everytime we got for an EEG they change his medicine. We have been on Kepra XR,...
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cortex | ||||
 woodykatz New - Was Not Aware I was having a Seizure
I have been diagosed having several conditions, this was a shocker!!!
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jennif... New - epilepsy and surgery
My daughter, suffering for intractable epilepsy, is 13 years old and in September 2008 underwent frontal lobectomy
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blinkf... New - My Life
Hello my name is cody flynn im a 19year old male i live in orlando fl i was born with Epilepsy because of my parants with drug problems.
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Sandee New - Unsure
deja vu, strong chemical taste and smell, tend to gag through episodes, light headed, memory is not a problem, NO hallucinations, only last a minute or so
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dconrad New - The story of my thirteen year old daughter.
My daughter is thirteen now. More than a year and a half ago, she was struck by an automobile while riding her bicycle. At the time she suffered a head trauma, not losing consciousness and no signs of injury to her head when a CAT Scan was performed. ...
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Mazeral New - My Son
my son as seizures with fevers when he was a baby and they stop at 7 years old, but came back at 21 years old.
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 BiyasMom | ||||
lsdor81 New - This Is My Story
I was diagnosed with generalised epilepsy the week before my 10th birthday. Years later, it has been identified as Juvenile Myoclonic Epilepsy.
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gvalegirl | ||||
Jamiejc4 New - My battle
When I was 16 I had my first Grand Mal seizure. About 2 weeks later I had another. Tests came back inconclusive and I was put on medication. After 5 years of being seizure free my doctor took me off medication. Then I had another one 6 months ago after...
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 mommy1... | ||||
 rck0025 New - College Grad---Recently Rediagnosed---Good Times
Really interesting story of a recent bout with epilepsy. It will make you laugh, cry and find a greater understanding of humanity. JK---you won't do any of those things, but perhaps I'll fell better after writing it.
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amos New - The Journey that seems to never end
I was diagnosed with partical complex seizures almost 8 years ago. For the most part, they have been under control, or so I thought. The last year has been chaos. I have had an increase in nocturnal seizures, increased auras, and my mood swings have...
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ericab... New - My Battle with Epilepsy
Althroughout my childhood, I experienced both grand-mal and complex-partial seizures. The grand-mal seizures almost costed me my life.
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jikpefua New - Amina
On Labor Day 2008 my 12yr old daughter had a seizure for the first time in her life while she was sleeping. Born at 24wks and this never occurred and now it is happening. Scared out of my mind that my child was dying right before my eyes was something I will never forget.
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sco4kids New - My daughter's Journery
Gailin's journey as an epileptic and how we are all trying to learn to cope with this disease together as a family.
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 DSGUTH... New - Just The Facts
My story starts off somewhat different than most others but, it's an honest story.
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vaness... New - my life with epilepsy
I am 33yr old female that have ben living with epilepsy for 23 yrs. I hated every minute I experienced with it!
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anshu | ||||
dudude New - How to convert iTunes protected AAC (M4P) to MP3
Are you annoyed by iTunes DRM? Do you want to remove it because you want to play the iTunes music on non-Apple MP3 players like PSP, Zune, Creative Zen, BlackBerry, PS3, iriver, Walkman, mobile phone MP3 player, etc., use it as background music in a home video,...
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 bturner | ||||
 dainty New - Live, Laugh, Love
2 genetic E kids... 19 & 15 Grand Mals, Myoclonic (JME)
I am still trying to sort out all types of info and figure it all out. My best to all*
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dmm23 | ||||
Broggie New - Thirty-seven years later. . .
I've been fortunate to have siezures 100 percent controlled for 37 years, until last week. Maybe.
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elizab... New - My Battle With Epilepsy
Hello my name is Elizabeth McMahon, and I live with my mom in South Milwaukee Wisconsin.
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ogdfolk New - Just Living....
Trying to work and keep my spouse and children safe and provided for at the same time.....with all the worry.
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veena New - no its not a story
its not some story its my life i m living it like a hell each time i got fits my sister,sit by me the whole night, my brother carry me from whereever i m fainted they both r younger to me but they both look after me like i m their child , i don't know i feel...
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nixon | ||||
Dennis N. | ||||
Delon32 New - My daughter with this disorder
All about my daughter with a seizure disorder that is still undiagnosed
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AndyP | ||||
brid New - brid
my absent seizures have returned after years of no attacks . They are only minor as i go into a daze/daydream . Have you come across any such symtoms of epilepsy as i am confused .
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lwong111 New - Shilah--The Sweetest Baby
Infantile Spasms a devastating diagnosis: A letter that we wrote to our friends and family members regarding the diagnosis of our then 9 month old daughter, Shilah.
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mdi63 New - Seizures during sleep
My son is 16 now. He has seizures in his sleep. Between 20 & 30 nightly. The medication has not proved successful in stopping the seizures.
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andrea... New - sophie
3 weeks ago (10 months age) my daughter Sophie began rolling her eyes up and to her left. since then it has continued. we see her do this in her high chair while eating and also at times when changing her diaper or putting her to sleep. they are very quick...
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thom7997 New - Living with epilepsy...or not
I'm a 46 year old woman who was diagnosed with epilepsy 8 years ago. I'm currently taking Dilantin, phenobarbital, and Lyrica. I'm particularly interested to hear from others who have had or are having a difficult time dealing with the side effects of...
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amanda... New - Our daughter Riley....
Our dauhter, Riley, is almost 7 and has had epilepsy from the age of 14 months.
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 gwen57 | ||||
jennyb248 New - my little boy life
kai is nearly 3 yrs old he has been sufferin fits since he was nearly a year old
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diddle... |
